Resources

The Global Parkinson’s Genetics Program (GP2) has developed best practice recommendations for the responsible sharing of individual genetic research results within GP2, focusing on ethical considerations, the need for validation, and the commitment to participants’ well-being.

This pre-print covers the aims and objectives of the Global Parkinson's Genetics Program, an ambitious five-year resource project.

GP2 wants the data and code to be used as widely and openly as possible, calling for a need to standardize the code across analysis teams. This policy outlines guidance and expectations for code standardization.

The recommended core/minimal data set is outlined in this document. These data elements are not mandatory for GP2 to include cohorts in the selection process, however, they may be helpful as a guide for new cohorts.

The Monogenic Portal enables clinicians and researchers around the world to contribute data and samples from families with PD, and obtain the results of genetics studies. The details of the electronic case report form (e-CRF) through which details of families/cases can be submitted are outlined here.

The Monogenic Network of GP2 is prioritizing cases where a monogenic cause of Parkinson’s disease is strongly suspected. Multiple factors will be considered and scoring criteria will be used.